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My husband was diagnosed with colon cancer stage4 😭... Praying for the quick recovery

Your going to live longer❤ AMEN

Which stage?

❤❤ur going to be strong and fine❤❤

U found ur purpose in life 🙏

The Dietitians don’t know how to treat cachexia!! However- have you considered a Whole Foods Plant based diet ASAP with low oil, low sodium- so that you decrease inflammation?? It’s not always extreme weight loss in all people… and How do you Increase certain foods with an amino acid load… like eggs, meat.. without increasing Tumor Burden?? I’m sorry about your husband Carole!💜🙏

The Dietitians don’t know how to treat cachexia!! However- have you considered a Whole Foods Plant based diet ASAP with low oil, low sodium- so that you decrease inflammation?? It’s not always extreme weight loss in all people… and How do you Increase certain foods with an amino acid load… like eggs, meat.. without increasing Tumor Burden??

CT DNA has become a good way to follow up in an adjuvant setting

CT DNA is an excellent way to detect systemIC type of rectal cancer

Wow

Please talk about post surgery and how long the gas and diarrhea stop

After what age are colonscopies not done anymore?

What about broccoli sprouts for sulforaphane ( John Hopkins research)?

Now & again I wonder how Simone is doing. This was a powerful & valuable conversation. The stats that came out of a story at the 2022 ASCO conference were alarming, with predictions for an alarming mortality rate by 2030 for people under 40 diagnosed with this disease. Thank you for spreading awareness.

Have adult diapers so you ruin that and not your cloths or beddding. At this time 2024 they are having me do two days prep. Pure liquid diet , nothing red or purple colors. Along with a cocktail of pills and powder in liquid mix. If night bathroom trips, leave light on and toliet lid up. Easy bottoms for sure!

Get some adult diapers during prep! For some - me - very much a messy situation and couldn’t be five feet away from bathroom during a five hour period.

Thank you for posting this

Meds and drugs are bogus, just live clean and sober to thrive naturally, forget medical mafia, really! :)

If you have a colonoscopy in your 30s. You eat garbage.

Lmfaoo yeah try to be under 25 with back and neck pain the doctors look at you and laugh in your face.

You look great and healthy. I'm 100% against body positivity but the way you're looking, it's clear you overcame your health problems and yeah, you do look great! That's on you and you deserve all praise for that!

So what did your stool look like? I mean normally I wouldn't want to know, but I feel like that's important in this case.

My very dear friend was diagnosed with stage IV colorectal cancer at the age of 30… She passed just after her 32nd birthday, and left behind two beautiful little boys, a husband, and lots of friends and family… Way before she would have ever been considered at risk…

I was diagnosed 5 months before I turned 50. They have lowered the recommended age to 45 now. Rates of CRC are rising in young people. Catching it early drastically increases your survival rate.

Such a strong woman. May God continue to give her strength.

So true! Wanting that piece of you back

The Medical field does not take us seriously

Thanks for sharing. I was feeling so tired in 2017, thought it was anemia. Went to the gastroenterologist and he said I was too young to have anything. I woke up from the colonoscopy and learned I had rectal cancer. I was only 33. What a sad and common story this is 😢

Thank you for sharing. You are awesome! 😎

Sounds like my doc

God bless him, please.

1000s of ppl get it a day hopefully they’ll get money like you have to handle sone of it

Yes... This is happening at ALARMING RATES WITH THE 💉💉💉ed!!!!🤬 Infuriating!!

Prayers to you and your family that’s a tough one

Stay strong! By the way I read you changed your diet prior to diagnosis. What was your diet?

Beautifully told Molly!! The Colon Club and the Colondar saved my sanity and maybe my life. Even in 2008 when I was diagnosed, I was told much the same, that there were few to none diagnosed in my age group. It's been an honor to be a small part of the mission of awareness, and I'm so proud of you and where this has all gone!

It is proven NOT TRUE that the worse rash you have the better response to treatment is.

Beautiful! Thank you Molly for ALL you have done <3 I hope that caregivers will still be a part of the Colon Club moving forward. So powerful to have a voice of all those impacted my CRC.

Wonderful video! So happy to be a part of the Colon Club family and help inspire others during their own cancer experience as Molly has done for many years 💙

Sadly I don’t even know if I get to have a story….. i’ve had symptoms for a long time now and a palpable tumor that three doctors felt but did not diagnose me up here in the greater Minnesota area where there is a desert for capable doctors and gastrointestinal doctors who are willing to actually do their job. secondly I had medicaid and Medicare but in an advantage plan and I was just told that I was 65 and my BMI was the cause of my symptoms and I was not treated for autoimmune problems or these cancer symptoms. The insurance gave me transportation but I could not get the care. Now I am no longer on the Medicaid and I’m paying for my own insurance because I have to and it’s all right but now I don’t have transportation. I have had to cancel two colonoscopy/biopsies because of transportation issues and because I’m so far away from family and our family that cares. my family treats me like I’m a least that’s why I call myself the least of these and sometimes it doesn’t feel so bad to think that I might die so I don’t have to feel this way anymore.

Interesting presentation and great to hear about new and potent drugs potentially being approved.

Literally listening to this webinar from my diluted bleach bath which helps my terrible skin rash caused by panitumumab! Yay, rash! This was a very good speaker. I really appreciated the information. Thank you!

'promosm' 🙏

I wish my Doc had thought of this. I was diagnosed with stage 3 colon cancer in 2021 November. My hands and feet are " jacked". The feet I have it worst, I use a walker when going long distances. I'm on pregabalin now and it's helped a little. I was on Gabapentin for over a year and went to a neurologist and he just said "We can try the pregabalin, it may or may not help". I haven't had a good night's sleep in the last two years. My hair had thinned out in the top of my head. I have to style my hair a certain we so you can't see my scalp. I almost have to do the "comb over". I'm wearing wigs or hats now. I just need suggestions, help pls and thank you

Expecting people to suffer for two lines to get a wonderful new expensive drug…. to me, it doesn’t sound so wonderful because it’s withholding something supposedly good~~ to create an atmosphere of hope, shrouded under suffering and so-called help for a disease that could kill person so quickly. Criteria for success is more about the drug. For those who have tried a lot, and and it created more pain and sorrow, you are not alone, I have suffered and was not able to get a diagnosis yet might be stage four already. It is OK for a new Hope but you just kind of wonder why this new drug that would work good more the other ones didn’t. They say that Jesus can heal. The Work of God says to put your hope in God.

Is blood Albumin always low with cachexia?? Or can it be in normal range.

Thanks- Patsy Polly in Roundtable Cachexia discussion addresses how cachexia can progress even after tumor has been managed... as a metabolic process...?

I am two months post ostomy surgery and want to thank you for this video. I have felt very alone, frustrated, overwhelmed and anxious but recently have become more accepting of the changes to my body and this video has contributed to that acceptance. Thank you for sharing your stories!

What is low residue food?